Thursday, September 15, 2011

Normal???

I am really starting to wonder if there is such a thing as a normal baby/child. As most of my friends and family know recently Hannah was diagnosed with having a metabolic disorder called Galactosemia, yeah I had never heard of it either. Everything I read says it is genetic but as far as we know no one in either of our families has it or has even heard of it. As of right now we don't know how bad it is, we are waiting for the referral to go through so she can go see a genetisist. Her doctor said she thinks it is probably the mild form since her levels are so low. While I was happy to hear that, I am also a bit cautious. You see a little under 2 years ago I was told not to worry about Isabella because the levels were so low. The levels showed that my due date was off or I was having twins, for Anencephaly my levels should have been much higher. So yeah it is hard for me to put all my faith in what the levels say.

So back to the normal thing. I was sitting in my van driving back from WIC, where I had to get her formula changed to soy because of the galactosemia. Anyways while I sitting at a light it dawned on me I have not had one "normal" child. Wesley had issues at birth, was born with two thumbs on one hand, has mild autism and problems with his eyes. Katie also had some issues at birth, has ODD and they think is also bipolar. The birth was good with Jonathan but he does show some major signs of OCD and maybe some behavior problems, though we were told it would be hard to tell with him because he could just be coping Katie's behaviors. With Isabella it was a hard birth and of course she had a fatal birth defect along with another NTD. And now there is Hannah who up until recently we thought was 100% healthy and "normal". But we have now learned is very likely to have a hard life with possibly some learning disabilities, ovarian failure at a young age along with more severe problems depending on how bad the galactosemia is.

Now do not get me wrong, I LOVE my kids no matter what "problems" they may have. I am not here complaining at all, I know their "issues" could be a lot worse than they are. I am very thankful and lucky to have 4 living children without very severe handicaps and one sweet angel in Heaven watching down on us. I am VERY thankful for them and to me they are all perfect. But as I was sitting there at that light I just starting wondering why, why some people have 1-20 perfectly healthy "normal" kids and I can't even get 1 out of 5. All I could think of was I either have really bad luck or God thinks way to highly of me.